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Parkinson's. Now what?
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Oct 2, 2018 17:47:54   #
TKT Loc: New Mexico
 
Very interesting the number of replies to this thread. Does this signify a need for a new subgroup of photography for persons with Movement Disorders or other disabilities?
TK

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Oct 2, 2018 18:00:50   #
markngolf Loc: Bridgewater, NJ
 
From one who has a slight disability due to Parkinson's, I feel we already have vehicles with the current sections.
Mark
TKT wrote:
Very interesting the number of replies to this thread. Does this signify a need for a new subgroup of photography for persons with Movement Disorders or other disabilities?
TK

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Oct 2, 2018 18:22:42   #
xt2 Loc: British Columbia, Canada
 
WOW!!!! Good for you gettingolder!!!




gettingolder wrote:
Bob as a fellow Parkinsons photographer I have some suggestions. First -please email me re: pros/cons DBS and some treatment options..discussion here is off topic. 2nd As another subscriber said--DO NOT give up. I do not have any idea how bad your tremor is or how effective the meds are in controlling the tremor.....suggestions need to be matched to your capabilities. A few one liners
1. use a remote all the time-wired or wireless..there are pros and cons to each (I assume the tremor is in your dominant hand
2. If you get excited (ie wildlife pix or a fading spectacular sunset) the tremor will be worse-use a remote!
3. Yes-you are now tethered to a tripod. I did not have good luck with a monopod
4. Ask your MD but beta blockers (used for stage fright) helps me some with #2
5. Depending on your arm strength (non tremor arm) I have some success holding the camera with one (left) hand and using a remote with the rt hand. Heavy tripods are limiting. Practice positions holding the camera to steady it (ie elbow on the chest--checkout pistol and rifle postures--ask for suggestions on steadying techniques). Obviously use image stabilized cameras/lenses
6. My landscapes are better because I spend more time with them now--wildlife shots can still be good (tripod) but you will have have fewer opportunities. (tripod set up)
7. Shoot flying birds with ball head or gimble set up and remote. Swing the camera ONLY with the left hand. It takes some practice but it works. SEE attached
8. I cannot solve shooting water birds form a boat, I built a platform for the tripod but the wave action overcomes the stabilizing efforts.

I was diagnosed in 2007. The tremor has NOT progressed...why is another topic. I had to learn to shoot my bow left handed (non tremor side)...took me 3 yrs but am now as good as rt handed. Do NOT quit photography or anything else --adapt! email me if you want , especially re: DBS jim.heywood@gmail.com
Bob as a fellow Parkinsons photographer I have som... (show quote)

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Oct 2, 2018 18:25:39   #
xt2 Loc: British Columbia, Canada
 
What a wonderfully inspiring thread! This bar-none is the best threat I have seen on our forum. The heartfelt expressions of support, experiences, suggestions and advice are inspiring for every reader. You can feel inspired and loved "gettingolder"... You are not alone.

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Oct 2, 2018 19:34:58   #
Bipod
 
BobT wrote:
I've recently been diagnosed with Parkinson's. So as an avid hobby photographer what can I expect in the future? Will a tripod become a must-use piece of equipment. So far. I'm still pretty steady.
I would greatly appreciate hearing from any UHHers who may also have this disease. Thank you.

Another option (besides monopods and tripods --which take time to set up and limit your mobility),
are "camera stabilizers". These come in two varieties: passive and motorized (gyroscopic).

The passive ones work by adding mass to the camera and lowering the center of gravity
below the hand.. Some also brace the camera to the body. They can be a pain to adjust
(the camera and counterweights have to balance), but are very robust.

The original Steadicam, invented by Garett Brown and introduced by the Cinema
Products Corporation in 1975, solved the problem of moving a motion picture camera
without a "dolly" or tracks, while avoiding bounce. This revolutionized documentary
film making, and brought the cinéma vérité style into the mainstream. (If they stopped
making the Steadicam, director Martin Scorsese would have to retire.)

Steadicam is still the most famous name in motion picture camera stabilizers,
but also makes systems for vidcams (and even smartphones!).
https://tiffen.com/steadicam/

Many bargain brands of hand-held stabilizers have come on the market.
https://www.amazon.com/Neewer-Handheld-Stabilizer-Release-Cameras/dp/B00WUCRVD0
https://www.productexpert.com/best-dslr-camera-stabilizer-steadicams/

Motorized stabilizers use the very considerable angular momentum of 3 spining gyroscopes
to resist turning of the camera in any plane. The camera attaches to the gyroscopes, and the
whole assembly attaches to a gimble mount. A big plus is that gyro-stabilizeras also work
inside vehicles and aircraft (that are moving in a straight line).
https://www.bhphotovideo.com/c/buy/brushless-gimbal-stabilizers/ci/28767/N/3717223530

I think you'll find there are shots you couldn't get with a monopod or tripod
that you can get with a stabilizer (either kind). It won't replace a tripod for
long exposures or close ups, and it's not for packing long distances, but it's a
powerful tool that can be a lot of fun. You may even find yourself shooting more
videos than stills.

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Oct 2, 2018 19:53:53   #
Angmo
 
A very close friend of mine came down with Parkinson’s.

I mentioned this to my Naturopathic MD. First thing he said was to do Heavy Metal Detox. Serious level of it Not the crap you get from a local retail shoo. Doctors will say won’t work. I read a case in New York it did. Long story shortish -

Parkinson’s is a bundle of symptoms. It’s not like a Broken arm. Simple things like Magnesium deficiency and also present the same symptoms. Don’t trust doctors too much. See a Naturopathic MD

Definitely get pharmaceutical grade CoQ10 from www.lef.org. Take 600MG or more a day of their highest absorption capable product.

Their website will be chock full of research and ways to deal it. Read read read. You will learn more than most Doctors. You can also speak with a doctor there for free for 30 minutes. They understand. Just ask for one familiar with Parkinson’s.

I will get back to you on the heavy metal detox products he took.

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Oct 2, 2018 19:53:56   #
Angmo
 
A very close friend of mine came down with Parkinson’s.

I mentioned this to my Naturopathic MD. First thing he said was to do Heavy Metal Detox. Serious level of it Not the crap you get from a local retail shop. Doctors will say won’t work. I read a case in New York it did. Long story shortish - the doctor cured the guys Parkinson’s and presented his work to the NY board. They said “because Parkinson’s is not curable, your patient did not have it”. Lots of
Doctors are idiots like those he presented to.

Parkinson’s is a bundle of symptoms. It’s not like a Broken arm. Simple things like Magnesium deficiency and also present the same symptoms. Don’t trust doctors too much. See a Naturopathic MD too. Take advantage of all of them To your benefit.

Definitely get pharmaceutical grade CoQ10 from www.lef.org. Take 600MG or more a day of their highest absorption capable product.

Their website will be chock full of research and ways to deal it. Read read read. You will learn more than most Doctors know. You can also speak with a doctor at www.lef.org for free for 30 minutes. They understand. Just ask for one familiar with Parkinson’s.

I will get back to you on the heavy metal detox products my buddy took. He kept Parkinson’s at bay for so many years he died of something else.

He worked out constantly 200 push-ups in a session. (Not all at once, maybe 75-100 at a time). He lifted free weights not off those useless weight machines.

Get in shape. Stay in shape. It was huge for him. Monitor your hormone levels. Tweak them if they are not 950 total testosterone. Balance estradiol and DHT. Easy enough to do.

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Oct 2, 2018 20:03:01   #
DesRose Loc: Phoenix, Arizona
 
vermis wrote:
Bob, I am a neurologist and I see a large amount of PD patients with the majority continuing to be functional. Here are a few things: have your neurologist start Azilect (rasagiline) which MAY have some positive effects on delaying the progress (may because this was not FDA approved as an indication). Carbidopa/levodpa also known as Sinemet is the standard treatment but this is mainly to help you "move" only if you are very slow to move. I don't like to start it early especially if there is no indication for it. There are several options for tremor but as I am sure you know, the tremor is mostly resting and improves with action. I am sure your neurologist would talk to you about options to help with the tremor if it really causes problems. Most important: exercise like there is no end, have a positive attitude and keep on going. You CAN NOT give up photography, there are many solutions to problems but giving up something you like is not one of them. The exercise is either cardiac or resistance with weights and of course, better yet both. Tai-Chi is wonderful to help with balance.
Bob, I am a neurologist and I see a large amount o... (show quote)


My spouse who is 10 years younger than me and only 54, just had confirmed diagnosis of Parkinson's disease 2 weeks ago from a Datscan. Good to hear that majority of people diagnosed with PD continue to be functional. Fortunately, I'm the photographer in the family (trying to add some levity to cover my feelings of frustration and fears of a future fraught with dementia) and will focus on taking 1 day at a time.

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Oct 2, 2018 21:27:26   #
Angmo
 
DChalfy wrote:
Vermis, what a brilliant answer, especially sharing your expertise and emphasis on not giving up photography. Even though I do not have PD, I am thankful we have people like yourself, so willing to give of themselves.

Bob, keep on going and doing what you love. As you can see, there are options available for you to investigate with your neurologist. Take it from a Marine, there is no surrender when surrounded, simply charge in another direction. As to practical matters, if it should come to pass that tremors affect your photography, a tripod and electronic cable release will help immensely. Stay strong, get out there and photograph!
Vermis, what a brilliant answer, especially sharin... (show quote)


Semper Fi

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Oct 2, 2018 21:39:52   #
frankraney Loc: Clovis, Ca.
 
BobT wrote:
I've recently been diagnosed with Parkinson's. So as an avid hobby photographer what can I expect in the future? Will a tripod become a must-use piece of equipment. So far. I'm still pretty steady.
I would greatly appreciate hearing from any UHHers who may also have this disease. Thank you.


This should not take you away from what you enjoy. Some modifications may need to be done. A camera with live view, a tripod, abs a remote shutter release will probably be needed, but you can still enjoy photography......good luck....i am having other problems that affect the way i WANT to do photography, but i refuse to let it stop me.....

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Oct 3, 2018 10:01:07   #
lwhitehall Loc: St. Louis
 
A trick I used to aid in stabilization is to take a tennis ball and cut a slit in it large enough to insert a heavy round metal ball (like a spherical fishing weight or old style pistol ball), a couple of finder washers, a 1/4" 20 screw with nut to pinch the slit back shut and attach that to the tripod mount of the camera. It's cheap, but it works due to the laws of motion (an object at rest tends to want to stay at rest). The metal ball will not want to climb the sides of the tennis ball, thus it keep the camera stable.

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Oct 3, 2018 10:07:20   #
Bunko.T Loc: Western Australia.
 
BobT wrote:
I've recently been diagnosed with Parkinson's. So as an avid hobby photographer what can I expect in the future? Will a tripod become a must-use piece of equipment. So far. I'm still pretty steady.
I would greatly appreciate hearing from any UHHers who may also have this disease. Thank you.


Yes, me in 2015. I'm told it affects different ppl in different ways. So far no tremors, but a sciatic lower back pain is my main problem. Walking stamina has waned some.
I guess you'll know how to adapt as it developes. Meanwhile exercise to keep phisically healthy.

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Oct 3, 2018 10:34:00   #
Stlouisphotog
 
What a wonderful offer, you are a good man Doc.

vermis wrote:
bounce anything unusual that you hear or were told to do, if you want, by me: hello12@bellsouth.net as I said, movement disorders and PD are a big part of what I do daily as a neurologist.
Eric

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Oct 3, 2018 11:19:26   #
TKT Loc: New Mexico
 
Mark,

What are the addition sections that already exist on thge hog that you mentioned?

TK

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Oct 3, 2018 15:07:22   #
4merShooter
 
Hi Bob,

Like some others here, I can relate. I was diagnosed with Parkinson's almost two years ago and have had Multiple Sclerosis for two decades.

If I could offer a word of advice, it would be to stay encouraged. I didn't and did no photography for a while. I'm just getting into taking photos again.

Both diseases affect people differently, some harder than others. In many cases, your tripod may become a close friend, but I understand the drawbacks of weight and carrying more gear. There are ways to overcome different problems. I wish I had pressed forward to use them rather than temporarily hanging it up. Use whatever help you can get and take advantage of any medical procedure that may benefit you - after investigating it, of course. My experience has shown that you don't have to give up when disability comes. Instead, make adjustments.

I wish you well,
Brian

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