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Dec 15, 2021 21:48:53   #
SteveR Loc: Michigan
 
Was this person Type 1 or Type 2? If Type 1, I'm surprised this individual was not able to get Medicaid. If type 2, insulin can be purchased for $125/wk with no insurance. With insurance it should be much less.

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Dec 15, 2021 22:25:54   #
chikid68 Loc: Tennesse USA
 
SteveR wrote:
Was this person Type 1 or Type 2? If Type 1, I'm surprised this individual was not able to get Medicaid. If type 2, insulin can be purchased for $125/wk with no insurance. With insurance it should be much less.


If you were asking about my stepson he was type 1 and the medicaid system in TN is terrible.
The only way to get Medicaid if you are a male is if you are a minor or on disability.
He was getting his insulin on Medicaid until he aged out of the system.

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Dec 15, 2021 22:48:37   #
SteveR Loc: Michigan
 
chikid68 wrote:
If you were asking about my stepson he was type 1 and the medicaid system in TN is terrible.
The only way to get Medicaid if you are a male is if you are a minor or on disability.
He was getting his insulin on Medicaid until he aged out of the system.


Jack47 is the one who originated the thread, so I don't think I was talking about your stepson. I it WAS your stepson, how much did you help him towards the purchase of his insulin?

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Dec 16, 2021 00:23:49   #
chikid68 Loc: Tennesse USA
 
SteveR wrote:
Jack47 is the one who originated the thread, so I don't think I was talking about your stepson. I it WAS your stepson, how much did you help him towards the purchase of his insulin?


Jack 47 said he read about the person and I said that it could very well have been my stepson since his story and struggles were published up to when he died at 25 from diabetic ketoacidosis.
I helped my stepson as much as I could afford even to the point where my own home and my vehicle went neglected to try to help him get insulin however I live on a fixed monthly income myself.

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Dec 16, 2021 05:46:29   #
SteveR Loc: Michigan
 
chikid68 wrote:
Jack 47 said he read about the person and I said that it could very well have been my stepson since his story and struggles were published up to when he died at 25 from diabetic ketoacidosis.
I helped my stepson as much as I could afford even to the point where my own home and my vehicle went neglected to try to help him get insulin however I live on a fixed monthly income myself.


I will say this, no diabetic should have to go without their insulin. Was he type 1 or type 2? Was he not able to get insulin through the ACA? Isn't that what the ACA was for?

Between Medicare and my supplemental insurance, I pay $125 dollars for a three month supply of insulin. That's 12-14 vials. Of course, between Part B and the cost of my supplemental insurance, I'm paying $400/mo. for those.

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Dec 16, 2021 09:39:57   #
Rose42
 
SteveR wrote:
Jack47 is the one who originated the thread, so I don't think I was talking about your stepson. I it WAS your stepson, how much did you help him towards the purchase of his insulin?


Good grief thats none of your business.

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Dec 16, 2021 10:29:23   #
SteveR Loc: Michigan
 
Rose42 wrote:
Good grief thats none of your business.


Well, Rose, if the story is made public, the question of how much the family helped certainly is of consideration. In this case, the stepfather helped as much as he could on his limited income. Last year when my son became septic from head to toe we not only paid his out of pocket expenses (thank goodness he had good insurance), but paid his car payments and car insurance and some credit card payments. Because his illness was not Covid related, though, he could not get the same debt relief that Covid patients could. Despite helping to the tune of thousands and thousands of dollars, his credit went from good to zilch. We paid the important things, though, and he's alive. At one point they told him, and us, that he was going to die. The only reason he's alive was that he was flown to the Cleveland Clinic for life saving heart surgery (the infection had attacked his aortic valve).

Another question that I brought up but have not heard a response is whether the stepson had gotten insurance through the ACA. If he had, insurance providers are required to provide insulin in their coverage. A co-pay may be require, like with Medicare, however.

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Dec 17, 2021 11:52:12   #
bob44044 Loc: Ohio
 
Jack47 wrote:
I was reminded again yesterday of the cost of Insulin in the U S, when I read the story of a 26 year old man who died because he could not afford the $900 per month for the drug. It breaks my heart, especially at this time of year to read of things like this happening when we live in the world of the Elon Musks and so many others like him who will never live long enough to spend their trillions.
Its probably still happening but I remember some years ago reading about bus loads of U S citizens coming into Canada from the U S to get insulin because the cost is 10% of what it is in the U S. I am assuming these were close to the borders and not days away.
I would like to find someone in the U S whose life I can make a little better. I am not rich by any means but I do have a comfortable life (mostly because I don't want much from life). I would like to make contact with someone who needs Insulin, or maybe their Child needs it. I have done a quick check and it looks like it will travel OK by mail or any form of ground transportation if packaged properly. Apparently in Canada you can buy it over the counter....not sure about the U S.
I am only looking for someone who really cannot afford it themselves or someone who has to make a choice every week/month.......do I buy food, pay the rent, or buy the insulin I need?
Thanks folks. If you know someone give me some contact info...email etc. there is no catch/scam here. I would really like to make a difference in a strangers life and in a way I'm being a little selfish. I know it will make a positive difference in mine. Merry Christmas to All.
I was reminded again yesterday of the cost of Insu... (show quote)



The absurdly high cost of insulin, explained
https://www.vox.com/2019/4/3/18293950/why-is-insulin-so-expensive

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Dec 18, 2021 07:17:52   #
SteveR Loc: Michigan
 
bob44044 wrote:
The absurdly high cost of insulin, explained
https://www.vox.com/2019/4/3/18293950/why-is-insulin-so-expensive


Humulin 70/30 is $125 per vial. One lasts me for a week. Trulicity, however, is $700 per month. I have found that with insulin alone it is much more difficult to control my glucose. With Trulicity it is amazing how much lower my numbers are. Thankfully, insurance covers my Trulicity as well. It's less expensive for them longterm than the eventual side effects that would develop from diabetes. My A1C is below 7 and my creatinine has remained steady for years.

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Dec 18, 2021 07:25:55   #
chikid68 Loc: Tennesse USA
 
SteveR wrote:
Well, Rose, if the story is made public, the question of how much the family helped certainly is of consideration. In this case, the stepfather helped as much as he could on his limited income. Last year when my son became septic from head to toe we not only paid his out of pocket expenses (thank goodness he had good insurance), but paid his car payments and car insurance and some credit card payments. Because his illness was not Covid related, though, he could not get the same debt relief that Covid patients could. Despite helping to the tune of thousands and thousands of dollars, his credit went from good to zilch. We paid the important things, though, and he's alive. At one point they told him, and us, that he was going to die. The only reason he's alive was that he was flown to the Cleveland Clinic for life saving heart surgery (the infection had attacked his aortic valve).

Another question that I brought up but have not heard a response is whether the stepson had gotten insurance through the ACA. If he had, insurance providers are required to provide insulin in their coverage. A co-pay may be require, like with Medicare, however.
Well, Rose, if the story is made public, the quest... (show quote)


No he didn't have an ACA policy due to the fact that he was spending every cent just trying to survive and couldn't afford the premiums co-pays and deductible.
While the aca is good in theory it's very lacking for lower income families.

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Dec 18, 2021 08:40:58   #
Tdearing Loc: Rockport, TX
 
SteveR wrote:
Humulin 70/30 is $125 per vial. One lasts me for a week. Trulicity, however, is $700 per month. I have found that with insulin alone it is much more difficult to control my glucose. With Trulicity it is amazing how much lower my numbers are. Thankfully, insurance covers my Trulicity as well. It's less expensive for them longterm than the eventual side effects that would develop from diabetes. My A1C is below 7 and my creatinine has remained steady for years.


I'm happy to see that you have things under control, it is a terrible disease and I am blessed to not suffer from it.

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Dec 18, 2021 09:13:17   #
SteveR Loc: Michigan
 
chikid68 wrote:
No he didn't have an ACA policy due to the fact that he was spending every cent just trying to survive and couldn't afford the premiums co-pays and deductible.
While the aca is good in theory it's very lacking for lower income families.


Did he have a job?

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Dec 18, 2021 10:54:11   #
chikid68 Loc: Tennesse USA
 
SteveR wrote:
Did he have a job?


Because of being in the hospital several times a year he was not able to maintain a job.
Why the third degree?
The boy is dead now

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Dec 18, 2021 11:07:56   #
chikid68 Loc: Tennesse USA
 
For anyone who would be interested in my son's story.
https://www.cnn.com/videos/health/2019/09/14/diabetic-running-out-of-insulin-wtvf-pkg-vpx.wtvf

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Dec 19, 2021 08:31:49   #
SteveR Loc: Michigan
 
chikid68 wrote:
Because of being in the hospital several times a year he was not able to maintain a job.
Why the third degree?
The boy is dead now


I did not fathom that in this day and time in America that there would not be some kind of plan to help an individual like your stepson receive the insulin that he needed. That just boggles my mind.

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