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Neuropathy and balance....
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Feb 10, 2019 15:21:42   #
brooklyn-camera I Loc: Brooklyn, NY
 
That's me....
MamaLucia7 wrote:
Wow, 10 years of this blessing in disguise and I have done tons of research and I have NEVER had neuropathy explained in such a good way. I am on Lyrica and Cymblata and have a pain pump with Morphine. It keeps the pain at bay as long as I don’t sit or stand for too long. I do all of my post photography work on my bed with a laptop on a roll away desk. Sorry for the long winded message. Nice hear from other photographers facing the same challenges. I photograph my clients in mountainous and waterfall/mill locations. I have picked up sturdy fallen branches I must use. I will sit on the rocks to get my balance and sometimes lay on my stomach. Customers are so helpful and the high school seniors’ moms that come along use my extra walking stick. Sorry Brooklyn, no way I would lay down anywhere near charging football players! Good luck💕📸💕
Wow, 10 years of this blessing in disguise and I h... (show quote)


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Feb 10, 2019 16:00:28   #
billbarcus Loc: IPNW
 
Ed Luczak, you are an Inspiration! I am overwhelmed by the amount of postings here on HedgeHog from photographers that suffer daily from the disabling effects of Ataxia/Neuropathy and other disabling conditions. The original poster opened a big door -- so many heart-felt responses.

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Feb 10, 2019 22:46:11   #
Bigmike1 Loc: I am from Gaffney, S.C. but live in Utah.
 
We all have our cross to bear. Not only do I have to tend with the neuropathy but am partially blind in my right eye so have to do my focusing with my left eye. When firing a gun I have to do it left handed. Gittin’ old ain’t fun but we all have to go there.

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Feb 11, 2019 01:32:48   #
Past Pro Loc: Spring Hill, Florida
 
Are you #6?

Sorry, couldn't stop myself.

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Feb 22, 2019 13:26:51   #
lamiaceae Loc: San Luis Obispo County, CA
 
lamiaceae wrote:
I'm 64 and having balance issues too when looking through a camera view finder. I'm not sure if it has much to do with neuropathy. I have gouty arthritis and a weak heart with AFib. I also have a lot of neuropathy in my feet and some in my hands. Not sure of how that relates, but I also have general muscle weakness. I can't seem to hold a camera steady any longer when standing. I find I have to be seated to take photographs. I do a little better when shooting indoors in my living room. Wow, year ago I could shoot a mechanical film camera at 1/15 sec handheld. Now I need a tripod or to sit down or I'm wobbling all over. I'm pretty much done with stairs too.

I feel your pain. I think I may need an electric cart to get around in and be able to shoot from in a seated position. I'd like to be able to continue doing photography in National and State Parks and other places. Otherwise I've had to bring a chair or shoot from my car seat.

Back in the Fall of 2017 I took a nasty fall. Tripped over a footing in a small city park and went down with two cameras around my neck -- one digital, one film. I held the cameras close to my body as I went to the ground. The cameras were none the worse but I fell on gravel not pavement, dirt, or grass. Got a knee pretty torn up as well as an elbow. I could not get up so there I sat bleeding as my Cell phone was in the car and not in my camera bag. Another elderly couple with some effort managed to get me on to a bench. I later drove myself to my doctor's office. Lesson: don't go photographing alone! When I was young(er) and more foolish I used to sometimes go hiking in the San Gabriel Mountains alone. Mountain Lions, Bears, Rattlesnakes and all.

I'm 64 and having balance issues too when looking ... (show quote)


My wife needs to read the Post as well so she'll understand my balance issues better. Especially pages 1 and 3.

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Feb 22, 2019 14:31:15   #
brooklyn-camera I Loc: Brooklyn, NY
 
Yes I did and glad that I did the post, not the only older guy with balance issues.
billbarcus wrote:
Ed Luczak, you are an Inspiration! I am overwhelmed by the amount of postings here on HedgeHog from photographers that suffer daily from the disabling effects of Ataxia/Neuropathy and other disabling conditions. The original poster opened a big door -- so many heart-felt responses.

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Feb 22, 2019 15:36:43   #
Earnest Botello Loc: Hockley, Texas
 
brooklyn-camera I wrote:
Yes I did and glad that I did the post, not the only older guy with balance issues.


The great part is realizing that I am not alone with my daily struggles, I am not wishing this on anybody, but happy to say that I am in great company.

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Feb 22, 2019 17:00:56   #
E.L.. Shapiro Loc: Ottawa, Ontario Canada
 
Brooklyn! My old home town. Came up in Bet-Sty, Williamsburg, and Brownsville.

I'm 75 and I am thankful that I can still work full time in photography- just a few health issues- aches and pains but nothing that is disabling. I was fortunate enough to survive Viet Nam relatively unscathed- at least physically!

I wish I could help you with suggestions as to medical issues but hopefully, your doctors will find some relief, physical therapies or alternative homeopathic remedies.

My only experience in such matters helping some of my fellow vets and others, who have neuromuscular disease or long term injuries to continue their photographic activities by adaptation of equipment. I have welded camera supports to wheelchairs and walkers, created walking stick/monopods, made custom brackets and grips and enlarged or augmented control knobs and levers on cameras. I have worked with folks who suffer from Parkinson's Disease and similar conditions as well as amputees.

Myself- a few years ago, after some minor thyroid surgery, I found myself with a bit of dizziness, imbalance and lack of my usual surefootedness. I found that a tall walking stick rather than a short cane type, helped me navigate stairs, curbs and avoid tripping hazards- help with the balance as well- kinda lie a tightrope walker. It also prevented me for bending over forward which can happen with a shorter cane or another mobility device. I found lots of active moving around and working out with moderately heavy weights soon got me back in shape. It's not a medical fact, but continuing on in the work is very therapeutic.

Also- Be careful on those stairs. REMEMBER- there is no hurry and nobody is rushing you. Find a camera case that will not put you off balance and perhaps enlist the assistance of someone when transporting heave gear up and down the stairs. Fined some young buck who wants to learn photography and "enslave him"- that how I started out on the business over 50 years ago. My first boss and mentor hired me the load heavy gear and push folks out of the way at wild ethnic weddings- don't ask!

Brooklyn people are tough stuff- keep up the effort and be well!
If I can suggest anything to rig something up for easier handling, let me know!

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Feb 22, 2019 20:56:55   #
brooklyn-camera I Loc: Brooklyn, NY
 
E.L.. Shapiro wrote:
Brooklyn! My old home town. Came up in Bet-Sty, Williamsburg, and Brownsville.

I'm 75 and I am thankful that I can still work full time in photography- just a few health issues- aches and pains but nothing that is disabling. I was fortunate enough to survive Viet Nam relatively unscathed- at least physically!

I wish I could help you with suggestions as to medical issues but hopefully, your doctors will find some relief, physical therapies or alternative homeopathic remedies.

My only experience in such matters helping some of my fellow vets and others, who have neuromuscular disease or long term injuries to continue their photographic activities by adaptation of equipment. I have welded camera supports to wheelchairs and walkers, created walking stick/monopods, made custom brackets and grips and enlarged or augmented control knobs and levers on cameras. I have worked with folks who suffer from Parkinson's Disease and similar conditions as well as amputees.

Myself- a few years ago, after some minor thyroid surgery, I found myself with a bit of dizziness, imbalance and lack of my usual surefootedness. I found that a tall walking stick rather than a short cane type, helped me navigate stairs, curbs and avoid tripping hazards- help with the balance as well- kinda lie a tightrope walker. It also prevented me for bending over forward which can happen with a shorter cane or another mobility device. I found lots of active moving around and working out with moderately heavy weights soon got me back in shape. It's not a medical fact, but continuing on in the work is very therapeutic.

Also- Be careful on those stairs. REMEMBER- there is no hurry and nobody is rushing you. Find a camera case that will not put you off balance and perhaps enlist the assistance of someone when transporting heave gear up and down the stairs. Fined some young buck who wants to learn photography and "enslave him"- that how I started out on the business over 50 years ago. My first boss and mentor hired me the load heavy gear and push folks out of the way at wild ethnic weddings- don't ask!

Brooklyn people are tough stuff- keep up the effort and be well!
If I can suggest anything to rig something up for easier handling, let me know!
Brooklyn! My old home town. Came up in Bet-Sty, W... (show quote)


I use the VA in Brooklyn and that sure helps with the Rx bills. I tried PT for a few weeks and it really didn't help at all. I think for me the best thing to do is just keep moving around and keep shooting. A spring football season semi-pro kicks off on March 30th. and hockey right now.

I shoot for the MTAPD, NYC Dept. of Correction, NYS Court Officers, FDNY-EMS, Suffolk PD, Suffolk Sheriff hockey teams. Also for some semi-pro football teams in the NYC & L area and the NYC Dept. of Correction.

So I just try to watch were I'm walking and be careful. Thinking that I may have to go for hand controls for the car, I have a hard time feeling the peddles now, which really stinks.

I still live in Starrett City now for just about 43 years. Time flies when you are having a good time.

Take care and keep on shooting my friend.

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