Mogul wrote:
Thanks for your response. Surgery is, of course, the most invasive treatment, but knowing that surgery is possible is knowing that there is a least hope. The scar tissue, being a collagen, is responsive to a variety of treatments; one clinic is using Collagenase, followed by extracorporeal localized lithotripsy, in effect, using a down-sized device with pinpoint accuracy to break up the scar tissue. It is said to be more effective and, of course, less invasive than needle fasciotomy. I am not a physician, but have been involved in the treatment of several friends and relatives. One doctor in Northern California prescribed a special diet and supplements and claimed to have slowed the progression of DC by more than 50% in a majority of his cases. Unfortunately, he was killed in a boating incident before publishing his findings. I became interested in DC when my doctor discovered a swelling in my left hand. An injection of Cortisone and manipulation monitored by an accupressurist solved my problem and I have had no recurrences or progression. Part of that, I believe, is because of the regimen of exercises and heat therapy advised (but npt prescribed) to ameliorate the effects of RA and OA. I would be very interested to hear if you have ever heard or witnessed the effect of lithotripsy or needle fasciotomy. Also, have you heard of any studies to combine treatments for DC, RA and OA? Again thank you for your informative response. Bill
Thanks for your response. Surgery is, of course, ... (
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In the last few years all doctors in this area have moved away from any other corrective surgery including lithotripsy or needle fasciotomy. Given the results of my Xiaflex injection I would be hard pressed to recommend anything else. The hospital in our area is a learning and teaching hospital. My daughter is in Med school at WVU. I'll have to ask her if they are still doing anything but injections now. The internet news I found is really not up to date. In my family the DC Gene seems more apparent both my brother and sister have the condition in the bottom of there feet. Both of them have very mild DC but they do have small nodules.
In the clinical trials of Xiaflex the success rate was very high. From what I remember it was effectively 100%. The Doctor that I had work on me in Pittsburgh was on the leading edge of Xiaflex injection treatment. He knew of no adverse side effects with anyone.