Chicago312 wrote:
Thanks, I'm feeling stronger. My previous oncologist (treated me for NHL 15-20 yrs ago; this time, it's HL) told me the same thing - no cure, consider it to be life long issue. As long as you are doing things you /2enjoy, that's all that matters.
Same here. Was treated for SMZL with Rituxan 5-1/2 and again 2-1/2 years ago. 5 years ago was also diagnosed with CMML and have been on watch and wait. Same splenomegaly, fatigue and weakness you probably experience. I don't expect a cure, just take it a day at a time. I find that the video hobby gives me a real boost. I'd probably do more but I have to wait for my friend so we probably do 3 or 4 a year. I feel stronger too. I smoke just two puffs of a strong sativa once or twice a week. It has given me a mental and physical boost nothing other than steroids has done so far. The boost lasts several days and makes me cheerful as well.